General Chat

its good to know you understand your sister ann
she must feel lonely a lot living on her own too,
i do with hubby working nights, (tho i could have willingly got him on his own an his him ann on monday, lol) it is hard to accept with this FM that one day you can be walking round rushing (in my case) feeling breezy in work , then wham, your eyes look like youve just been hit by a train, and your body aches like it, lol
and to think its been around since first world war, diagnosed cases were of shell shock and simular illness that affected muscles

they do try to spare me from lot of stress, but then i try to tell son i dont care how old he gets im still his mam, and im still only 45 , so if i wana be concerned for him its cos i love him to bits, (kids, tut)

I think doctors are more aware of it these days Julie Ann, even if they don't know what causes it. My sister had no problem getting an assessment for DLA. It is lay people who don't find it easy to understand, I sometimes find it difficult because my sister will say she can't do this and that, then she'll tell me she's been to a show in London on the train, been shopping etc, But I do realise that it is an 'up and down' illness and some days she is fine, others she is no good for anything. She lives on her own so can go the way she feels, it must be difficult for your OH and son to know when youa re having a good or bad day. However, that is no excuse for them to be rude and exclude you. You need to get your OH on his own after you have cooked him a nice meal and when you are calm, then have a talk to him about how you feel.

you got it there liz

i hope for your sake tomorrow your Oh is not diagnosed as diabetic,
cos him and son will expect him looked after then,
makes you cross doesnt it,

that blinkin air stewardess, she sounds right thoughtless,
i cringed when you siad how she bumped into you all time
i can imagine how that felt next day,

Julie, your lot sound as tho they think they are trying to make life easier for you perhaps but really they aren't treating you fairly, you will worry more if there are things you don't know about fully. And no excuse for o.h. to be rude to you but I know all about that, o.h. was rude to me on Sat and his son's girlfriend ticked him off and a second time when he was abrupt with me, she said, That was so rude. I think she sees where her boyfriend, o.h's son, gets it from cos he is like that to her too.

I wish there was something we could do to make people aware of how fibromyalgia makes us feel. The stewardess on the flight going to Corfu kept charging up and down the aisle of the plane and banging my shoulder, as I was sitting on the seat next to the aisle, she also did it to the woman I got friendly with who has dreadful arthritis and walks with a crutch. I was in agony the next day from all the bumping, she hit me with a trolley too stupid woman.
When we were out on Saturday I said I would prefer to go away abroad for three weeks, it takes me almost a week to relax and unwind and then there isn't much time to enjoy everything before there is the hassle of repacking and travelling home again. O.h.'s pig of a son says Three weeks? Go to work if you want to go away that long! I reminded him that I am a pensioner now and if I was well enough to work would certainly try and do so! One day i will smack him in the mouth with the things he has said to me over the years, called me lazy a couple of years back and o.h. didn't even say anything to him. The whole family are pig ignorant, let's see what happens if o.h. is diagnosed diabetic after tomorrow's repeat fasting test for high sugar levels, as he won't stick to the rules about diet and so will end up ill, will the son act as if it is nothing with him too or expect me to be a full time carer for his father?

Lizx

sorry guys
wehn i said bout hubby and son ,its generally at home if i ask son , wot happened, when he been out at weekends, or wwehn he been upset over his ex girlfriend , ive tried to support him, neva said owt to her,

at weekend he wen out with mates, hes 18 , always fine wen he goes anywhere, hes never been trouble, ever, he came home early hours sunday, when i see him round lunch time he had cuts on face, daughter and son in law were here, collecting twinkle toes who slept over here night,
i said what the hell happened, he (apart from being hungover)wernt to polite, when i told hubby come see his face he tells me to just leave it, let him calm down, keep out of it,!!!!!!!!!!!! its happeneing far too often me being spoken to like rubbish, hubby actually was really rude to me

turns out (and other things have colaborated it) it wasnt sons fault a fight broke out he tried to pull a mate away , yada yada
bouncers took care of it, and sorted out sons cuts,

i refused to speak to either of um rest of day,
and only spoke about it monday ,

as for me and neurologist, i be going on my own in future,
told OH id go alone monday, not bothered,
FM is not really understood illness, even by profesionals is it, ?
so they dont appreciate how sometimes yu need them painkillers, even if its jsut up to few times a week,

thanks for all replys
xxx

Julie Ann, I have been ill often enough to know how you feel, disorientated and unable to cope, But you are still a person with feelings and a mind. Dont let them shut you out. Have they done anything as simple as start you on a high dose of vitamins? How about swimming, lots of people swear by it for muscular pain. Are you a diabetic, you could have a straight-forward neuropathy, which can affect all the nerves and muscles.

Julie Ann, do you mean that that is what your husband and son say at home to you when there are problems. Are they trying to protect you from worrying?

its got nowt to do with you????
They are kidding right??
You go in on your own in future and take a pad and a pen with you..... and a nurse, you can always ask her things later!

Bless you.
Deanna X

Hi Julie, it's so frustrating this fm isn't it?

When I was in Corfu, after I added a duvet on top of the mattress that was so hard, I slept better and of course, having a room to myself helped, but now I am home again I feel awful. In Corfu I was going to bed earlier, around midnight or so, and then getting up mid morning, having breakfast and either having a lounge on the balcony or up by the pool, went out on a couple of day trips and even walked to the next village etc then would get ready about 7.30 and walk ten mins to the village, maybe for the second time that day, and wander round deciding which restaurant to eat at and I felt good. Got home and feel like a wet rag again. Have fallen asleep twice over the computer this evening, now beginning to feel a second wind coming but will keep drinking the horlicks and get myself to bed. I am sure it was the warmth in Corfu made me feel better, never needed more than a cardi in the evening and even when it rained, it wasn't cold.
Take care and hope the therapist can help you

Lizxx

just to check up on me on how i am since coming off venlafaxine to change to citalopram,
hubby came with me,
in a way it was good but in another i felt worse with him and neurologist,
hubby told him im like living with a totally different person
(i thought ang on this aint relate mate)
im tearful a lot (thats cos the men keep saying , dont worry you dont need to know, its got nowt to do with you)

im tired cos i dont sleep too well,

i used to be able to do a lot of the finances in the home in fact all the financial stuff, now i cant , forget stuff, cant concentrate,
i ache a lot,

doc did agree, cos of sleep pattern and pain that can atribute to lack of concentration, tearfulness
then makeing the pain feel worse (feel worse, it is )

then asked bout exersise, i said i work hard, dont sit down in work, constantly on go, stretching walking rushing round , you know,
doc says yeh but maybe a gym would help and learn to do gentle exercise with a coach that would help neck and shoulders, (jeeze the shoulders lock when i stretch up for something in work, )
i told him yeh and then i will end up on sofa unable to move cos of head pain, i told him i feel like im lazy when people say bout exercise, im not trying to get out of it,but i physically ache when i finish work,
you know sometimes ive got a job to stand on my feet they hurt that much from walking round for 8 hours,

god sorry guys im going on here

well jist of it is i gota see a cognative therapist, who is expert with sport psycology too,

does that mean hes gona teach me to think the pain away, or psycoanylise why i should be able to be an athlete , lol
i have to laugh or ill cry again