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Top tip - using the Genes Reunited community

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Family help and support post

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ProfilePosted byOptionsPost Date

Annina

Annina Report 3 Jan 2010 16:12

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PollyPoppet

PollyPoppet Report 3 Jan 2010 17:29

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maxiMary

maxiMary Report 3 Jan 2010 17:55

Me too, I lost a son at 15 minutes of age, and my father 9 months later. I can still well up easily about my son, 35 years later, I miss my Dad terribly esp at christmas time, when he became the child in all of us LOL. having said that it took almost 15 years to chat easily about dad, but the moments are always there. my Mum died at 96 y/o and I miss her too but am much more accepting of the inevitability of her death, than of dad who died too soon,
I grieve over further diagnoses in my family, especially Autism, intellectual challenges, ADHD, anxiety & depression, and a sweet baby gt-nephew with Downs, but have to step back and take a deep breath and continue moving forward, always hoping for the little miracle.
When my daughter was diagnosed with epilepsy at age 5 the wind was knocked out of my sails, until I realised, that though this was a life-sentence in a way, it was not life-threatening as a brain tumour would have been, and we could handle it. She has since gone from 30+ seizures a day to seizure-free, has 4 children, and that's another story for another time.
Bless you all, whatever your cross to bear, there is light at the end of your tunnel, we can walk together . . . .
Hugs
Mary

DIZZI

DIZZI Report 5 Jan 2010 06:13

1972 I WAS 5 MONTHS PREGNANT
THEY WOUKDNT LET ME SEE HER
JUNE TO DEC THAT YEAR 6 FAMILY MEMBERS DIED
1874 GRAN
1976 DAY BEFORE MUMS DATE MY DAD
4 DAYS BEFORE MY BIRTHDAY

Little Lost

Little Lost Report 5 Jan 2010 08:37

it sounds like a very good idea in theory but in practise it has been done on here before and when people start airing their problems in public thats when the 'nasties' jump in. So I hope your thread is successful in helping some people but just be careful what personal details are printed.

Sharron

Sharron Report 5 Jan 2010 12:47

Sorry to harp, but,as you are no doubt all sick of hearing, I had an abusive mother and could never articulate the problem until recently when I lighted upon the condition of Narcissistic Personality Disorder.

I have been there and can listen to anybody who is trying to understand a similar situation.There is also a thread full of similarly afflicted people that I can bring up should it help anybody.

PollyPoppet

PollyPoppet Report 5 Jan 2010 15:57

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