General Chat

nudge for Claire

Lynn I will ring you sometime about this, if that's OK? My grandson was tested a few years ago and has been wearing glasses with coloured lens for quite a while now. I went with them for the test and would not have believed the great difference made by the colour filters, if I hadn't seen it for myself. They test to see which colour best helps the individual. J's are purple.... and he thinks they're 'Cool'. They have helped no end. Gwyn

Hiya lynn My 8 year old is severely dyslexic. Irlens is linked strongly to dyslexia, i learnt this from a course i was on, he says white pages make letters jump around and he struggles badly with literacy and becomes very frustrated, He has been refered to an institute in manchester which we are hoping the NHS will fund. We are saving up to get the glasses as I have been told they help immensely, Well done to your lass, Caz xxx

anyone have any first hand experience of this ? would be very much appreciated xxLynnxx

Thank you for the replies Im very proud of Grace and always have been shes a one off, and has always tried her hardest, i will certainly be looking into this a lot further She was given coloured sheets from college, to overlay on writing, which straight away helped, it has also been advised that she write on a specific shade of green paper, and in blue ink, sunglasses will help with everyday brightness, which can cause the fatigue and in a matter of just a few days, we are amazed by the difference this has made, Each person with Irlens reacts to different colours, so specific tests are done, to find the colours that best help them, Will keep you in touch with how things go, as we find out more about this xxLynnxx

Never heard of Irlen Syndrome,but this puts me in mind of a programme I saw on TV about 12 months ago. This was a mother who had 3 autistic,or Aspergers children,and she lived in Blackpool,coping on her own,and she went to Chester to a special opthalmist to get some glasses that were found to help,and the difference was amazing. Not suggesting that it is the same thing,but strange that a special lens can help. I believe (although it was never diagnosed) that my eldest grandson was slightly dyslexic as he was never academic and wrote some of his letters the wrong way round.i.e. a p looked like a 9.He was tested but nothing was done. However he is now a very good chef,and was in the final a couple of years ago for 'chef of the year'. Everyone can't be academic,but good at more practical things. It will be interesting to know how your daughter gets on Brenda x x

Lynne, but hasn't she done well to get as far as she has despite this. I have not heard of it before, as somebody said maybe they have only just started using a reliable test for it. there seem to be several things connected to dyslexia which we are only just learning about. Middle Grandson has Dysgraphica which is also connected. I wonder if these were also around many years ago when people were just labelled ' backword'? Anyway, it is very bad that there is no financial help to be had with the glasses isn't it? Hope you can solve that one. Ann Glos

Irlens also makes them very tired all the time too, because of the strain it causes, Grace has always been a sleepy head, wanting lots of sleep, now i know why, Irlens is a relativley newly recognised disorder, i know, and closely associated with dyslexia, which she was tested for in school, but she is going to be tested again. Have just found out, that she can have special coloured glasses for this, but they have to be bought privatley, they are not available on the NHS, and they are very expensive, £300+ just for the lenses, will have to really look into this, xxLynnxx

Shouldn't be too hard on yourself or others for not picking this one up....Lynn......it sounds a very difficult one to diagnose, and perhaps they have only just found new ways to pick it up..... All the more praise to her and you and your family, that she managed to do so well, despite the problem....pat on the back...

She is obviously not what to let things get in her way Lynn, Good luck to her, in whatever she does Ann x

Middle daughter, Grace, has struggled all her life, with school work, reading writing, concentration, and co-ordination, lots of different tests done, and at times a very irrate mother, who knew something wasnt quite right, has been at her witts end, asking why, with no answers. Grace got through school and came out with 6 g,c,s,e, s and a G.N.V.Q 1 which we were very proud of. Now19 and at college, doing hairdressing, grace has been struggling quite badly with the written side of things, and as a result, has started to lose confidence, The college have been wonderful and this week did some tests on her and its been proven without a shadow of a doubt that she is suffering from Irlens Syndrome, and with help can learn to live with it, But my god, why wasnt this found out earlier, and she could have been helped, And why do i feel so guilty, that i didnt push more to find out, and help her. Below for those that dont Know, is a brief summary of what Irlans is and how is is treated Irlen Syndrome, also known as, Scotopic Sensitivity Syndrome (SSS) is a type of visual perceptual problem. It is not an optical problem. It is a problem with how the nervous system encodes and decodes visual information. Academic and work performance, behavior, attention, ability to sit still and concentration can all be affected. Individuals with this problem see the printed page differently, although they may not realize that they do. Having Irlen Syndrome keeps many people from reading effectively, efficiently, or even at all. Until now, it has baffled educators and medical scientists because it is undetected by standard visual, educational and medical tests. Irlen has a patented treatment-method which uses specially formulated, coloured overlays or coloured lenses worn as glasses or contact lenses to reduce or eliminate perception difficulties. Anyone else have any informastion on this please xxLynnxx

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